an existential crisis

Moskenesoya, Norway

Something shifted this week. After a month or so of stubbornly cold, gloomy weather we awoke to clear blue skies and temperatures that soared into the eighties. Suddenly everything turned green. The air was thick with the fragrance of honeysuckle and lilacs. I had just received a message from my daughter with a video of my granddaughter receiving an award at school (she's in kindergarten) citing her for being mindful, hard-working, kind, helpful, and inclusive. I was sitting on my deck watching a couple of deer in the woods out back, enjoying the sound of birdsong and the acrobatic antics of the squirrels, thinking to myself, "This is a perfect day." Then I received a second message from my daughter. 

She is a Child Life Specialist which means she supports children and their families when they come into the hospital where she works. Using age-appropriate language, she educates them about what they can expect to happen, and she uses calming and distraction techniques to help them through it.

This message described a child she was seeing who had been admitted with RSV a few weeks earlier but didn't seem to recover completely, so her parents brought her back to the ED. She was displaying some behavioral changes which led them to perform an MRI of her brain, and there it was: a massive midline tumor with hydrocephalus and metastatic spread all the way down to her lumbar spine. BAM!

She is six years old. My award-winning granddaughter is six years old.

How does anyone process this? One child happy and healthy, the other doomed to pain, fear, and suffering that herald an early death. In a few months. On an otherwise normal day.

How can we hold space in our hearts for both of these children? For their parents and siblings? 

How would you? 

"Hope is the last thing ever lost."

~Italian Proverb~

I ended up on a path through the woods. This is my "go to" refuge when I need to think things through, when I need peace, or strength, or insight. A walk in the woods serves as the perfect metaphor for the duality that sometimes throws us for a loop. One minute it's warm and sunny, the next it's cloudy and cold. One minute the path is straight and smooth, the next it's stoney and steep. One minute the air is quiet and calm, the next it's windy and wild. One minute you know the way; the next minute, you're lost.

Like life.

"Of all the paths you take in life,

make sure some of them are dirt."

~John Muir~

The child my daughter supported during her MRI will be transferred to a medical center that is better equipped to treat her. My daughter will never see her again. Nor will she ever forget her. 

Nor will I.

"At the end of the day

people won't remember what you said or did.

They will remember how you made them feel."

~Maya Angelou~

jan