There is a fork in the road
along the healing path in narrative medicine. One pathway invites patients to
tell the stories of their illnesses. The other beckons health care providers to
share their experiences as healers. The journey for both patients and providers
is similar. It embraces memory, invites reflection, provides perspective, and
engages support.
The patient’s narrative
recalls his symptoms. He lists the diagnostic tests that were performed, names
the medications that were prescribed, and traces his journey back to health…or
not. All of which has to do with his care. But equally important is the fact
that he can tell you how the diagnosis affected him emotionally and psychologically.
He may have despaired to learn he had cancer. His entire world may have spun
out of orbit because of a stroke or disabling injury. How will he manage if he
can’t work? How will he support his family? Who will pay the bills and mow the
lawn? He dreads burdening his wife and children with his care. He wishes he
could die…not a healing thought at all.
If, on the other hand,
the news is good, let’s say the lump turns out to be benign or the doctors are
able to slip the stent in before the infarction occurs…the patient’s story may
end on a happy note. Besides relief and gratitude, there may be some spiritual introspection.
A surge in compassion and empathy. New found joy and peace. An entirely
different story.
“Piglet noticed that even though
he had a very small heart,
it could hold a rather large amount
of gratitude.”
~AA
Milne~
When the health care provider
sets out on his narrative path, it takes him to the bedside of patients he has
cared for over the years. He recalls patients with interesting and unusual
presentations, baffling symptoms, and resistant conditions. He re-experiences his
triumphs and his defeats. He may finally admit to the uncertainty, oversights, and
errors in judgement that have haunted him over the years. He can name the
patients who recovered against all odds.
“If you want a happy ending,
that depends, of course,
on where you stop your story.”
~Orson
Welles~
But, just as important,
he may finally acknowledge how hard it was to sustain his marriage and to be
present for his children. He may have missed his son’s winning soccer goal at
the state championship because he was tied up in the operating room, or he may
have forgotten his wife’s birthday because of some committee meeting or other. A
huge part of his story takes place outside of the hospital and office.
Our stories take into
account more than what happened to us, when it occurred, or how it ended. They
embrace how we react to life’s vagaries, how we interpret and process them, how
we survive them physically, emotionally, and mentally, and who we become
because of them.
“Telling our story does not merely
document who we are.
It helps make us who we are.”
~Rita
Charon~
jan
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